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Childhood Brain & Spinal Cord Tumors
A Guide for Families, Friends & Caregivers
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- Cover
- Title
- Copyright
- Table of Contents
- Foreword
- Preface
- + Chapter 1: Diagnosis
- + Chapter 2: The Brain and Spinal Cord
- + Chapter 3: Types of Tumors
- + Chapter 4: Coping with Procedures
- + Chapter 5: Your Child's Hospitalization
- + Chapter 6: Family and Friends
- + Chapter 7: Forming a Partnership with the Medical Team
- + Chapter 8: Surgery
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+
Chapter 9: Clinical Trials
- Why are children enrolled in clinical trials?
- What is standard treatment?
- What types of clinical trials are there?
- What is randomization?
- What about experimental drugs?
- Who designs clinical trials?
- Who supervises clinical trials?
- What questions should parents ask about clinical trials?
- What is informed consent?
- What is a protocol?
- Should parents receive the entire trial document?
- What happens if parents say no?
- Can parents remove their child?
- Pros and cons of clinical trials
- + Chapter 10: Venous Catheters
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+
Chapter 11: Radiation Therapy
- Types of radiation therapy
- Who needs radiation treatment?
- When is radiation treatment given?
- Questions to ask about radiation treatment
- Where should your child go for radiation treatment?
- Radiation oncologist
- Radiation therapist
- Immobilization devices
- Sedation
- What is a radiation treatment like?
- Possible short-term side effects
- Possible long-term side effects
- + Chapter 12: Chemotherapy
- + Chapter 13: Common Side Effects of Chemotherapy
- + Chapter 14: Bone Marrow and Stem Cell Transplantation
- + Chapter 15: Feelings, Communication, and Behavior
- + Chapter 16: Siblings
- + Chapter 17: Nutrition
- + Chapter 18: Record Keeping and Finances
- + Chapter 19: Sources of Support
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+
Chapter 20: School
- Keeping the school informed
- Keeping teacher and classmates involved
- Keeping involved with school work
- Siblings need help, too
- Returning to school
- Avoiding communicable diseases
- What about preschoolers?
- Rehabilitation
- Identifying cognitive problems
- The terminally ill child and school
- Record keeping
- On accepting disabilities
- + Chapter 21: End of Treatment
- + Chapter 22: Relapse
- + Chapter 23: Death and Bereavement
- Chapter 24: Toward the Future
- Appendix A. Blood Counts and What They Mean
- Appendix B. Resources
- Appendix C. Books and Online Sites
- Appendix D. List of Pediatric Neurosurgeons
- + Index
Childhood Brain & Spinal Cord Tumors, the most complete parent guide available, includes detailed and precise medical information about both benign and malignant brain and spinal cord tumors that strike children and adolescents. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement.
Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.
Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.
Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. Includes extensive resources and a pull-out medical record-keeper.
Book Details
Authors
Maria Sansalone, Patsy Cullen, and Tania Shiminski Maher
Categories
Health & Fitness > Diseases > Cancer
Publishers
Publication year : 2012
License: All rights reserved ©
Times read: 0

